I feel better now than I have in a long time. My back is bothering me less, and my shoulder is almost functional. The fact I feel better is the only tangible evidence I have that I’m gravely ill.
Monday, medical science is going to address that issue, by making me feel like shit. The plan is to drip a chemical into my bloodstream that almost kills me, to make me well. Six times (at least to start with). In the next half-year I will suffer greatly to defeat a disease I don’t feel at all.
The Official Sweetie of Muddled Ramblings and Half-Baked Ideas has been preparing. Ice packs for hands and feet; apparently during the infusions extremities can ache like hell. Calcium for bones. A bin to puke in while in bed. Preparation for whatever happens in my gut (it could go either way). I got a shirt with sleeves that open up to allow access to my veins. Beanies to cover my bald head.
Today we officially ran out of ways to prepare. We laid out the changes to my medications for the next few days in my big weekly pill organizer, and from here on, at least for a while, we will be reacting, rather then preparing. It’s all crazy and I would be so lost in all of this without The Official Sweetie by my side. In conversations with the health industry, I introduce her as my manager. This maze is bewildering and confusing, and without her I would likely spin in circles and fail.
But preparation is a big part of how Official Sweetie copes with shit and now the preparation is done. Monday big things happen, but that’s not until Monday. We are both rudderless as the river sweeps us along. We have nothing left to do but imagine the future and pass each other incredulous looks about the present and cry a lot. Tomorrow I will smog my little convertible and Try Not To think About Stuff. I think I will shave my head, because it may be years before I have a long beard again and I want to see myself with that look. I’m also curious about the scars I have up there, from past foolishness.
But tomorrow the ticking clock will be especially loud.
